Help Ishan Beat SMA Type 2 – Needs ₹17 Crore for Treatment

 

Uluberia, West Bengal: 1.6-year-old Ishan Ghosh was growing up like any other child—laughing, playing, and bringing joy to his parents, Koushik Ghosh and his wife. But as time passed, his parents noticed something unusual: Ishan could not stand properly like other children of his age. At first, no one could understand the reason. His family thought it might be a delayed milestone.

However, after months of medical check-ups, tests, and endless anxiety, the doctors gave a shocking diagnosis – Ishan is suffering from Spinal Muscular Atrophy (SMA Type 2), a rare genetic disease that weakens muscles, limits movement, and can even threaten life.

For Ishan’s family, this was devastating news. What made the situation worse was the treatment cost. Doctors said that only a gene therapy injection – Zolgensma – can save Ishan’s life, but it costs a staggering ₹17 crore (170 million rupees). For a middle-class family living in Uluberia, arranging such an amount is impossible.

This is why the family is now appealing to everyone – please support Ishan, donate for his treatment, and help him live like other healthy children.

What is SMA Type 2?

Spinal Muscular Atrophy (SMA) is a rare genetic disorder caused by a missing or defective SMN1 gene, which results in progressive muscle weakness. There are several types of SMA, and Type 2 usually appears in children between 6 months and 18 months.

• Children with SMA Type 2 can often sit but cannot stand or walk without support.

• If left untreated, their condition worsens, leading to breathing and swallowing difficulties.

• The only effective treatment currently available is gene therapy with Zolgensma, which replaces the missing SMN1 gene and stops the disease from progressing.

The catch? Zolgensma is one of the most expensive medicines in the world, costing over ₹17 crore in India.

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Previous SMA Cases in India – A Glimpse of Hope

Ishan is not the first child in India to face this challenge. Over the past few years, several SMA cases have gained attention, and with the help of crowdfunding and public support, some children have managed to receive treatment.

1. Baby Teera from Thailand (Global Example): In 2021, Baby Teera’s story went viral, and donations poured in from across the world. She successfully received Zolgensma and showed improvement.

2. Baby Ayansh from Hyderabad (India, 2021): Ayansh was diagnosed with SMA Type 1, and his parents started a crowdfunding campaign. With the support of lakhs of donors, celebrities, and media, they raised over ₹16 crore, and Ayansh received Zolgensma in the nick of time.

3. Baby Mohammed from Kerala (India, 2022): A similar case where the community came together to raise over ₹18 crore to fund the treatment.

These cases prove that miracles happen when people unite for a cause. Today, Ishan needs the same miracle.

The Urgency of Treatment

Doctors have warned that the sooner Ishan gets Zolgensma, the better his chances of recovery. SMA is a progressive disease—every day lost means irreversible damage to motor neurons.

💔 Without treatment, Ishan’s condition will deteriorate further, and he may lose the ability to even sit, move, or breathe on his own.

But with timely treatment, Ishan can live a near-normal life.

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A Parent’s Plea

Ishan’s father, Koushik Ghosh, said with tears in his eyes:

“We never imagined our son would face such a rare disease. He is our only child, and we cannot imagine life without him. But the cost of the injection is beyond our reach. We request everyone—please support Ishan, please donate whatever you can. Every rupee matters.”

This desperate plea is now reaching the community, and the family hopes people will come forward to help them save their child.

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How You Can Support Ishan

The family has set up ways to collect donations and is requesting help from individuals, NGOs, corporates, and even government funds.

👉 To support Ishan, please donate using the QR code provided below.

👉 For more details and authenticity, check Ishan’s father’s Facebook page and address, given below.

https://www.facebook.com/nabakumarghosh.ghosh.35

Every small contribution will bring Ishan closer to the life-saving injection.

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Why Public Support is Crucial

• The cost of ₹17 crore cannot be raised by one family alone.

• Crowdfunding platforms like Ketto, Milaap, and ImpactGuru have previously helped SMA children in India.

• Social media campaigns have shown the power of collective humanity.

By sharing Ishan’s story and contributing, you become part of a movement that saves lives.

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Uluberia and Bengal Unite for Ishan

Local community groups, friends, and neighbors are already trying to spread awareness. With national and international support, the goal can be achieved. West Bengal has seen collective action in many humanitarian cases, and now it’s time again.

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Final Appeal – Save Ishan

This is not just a story of a rare disease. This is a story of hope, love, and humanity.

• Ishan is just 1.6 years old.

• He deserves a chance at life, at school, at dreams.

• Without support, his story may end before it even begins.

🙏 We urge everyone—please Support Ishan, Save Ishan, Stand by Ishan.

👉 Donate via QR Code (below).

👉 Check Ishan’s father’s Facebook page and address for more details.

https://www.facebook.com/nabakumarghosh.ghosh.35

Together, we can make the impossible possible. Let’s give Ishan the gift of life.